20/07/10 Update

July 20, 2010
Sadie's been doing very well recently and putting up with mummy being unable to get out much (I'm a bit unwell, so just resting until things get better) and bless her I think she's a little bit bored.

Luckily Drew has been taking Sadie for some much loved walks and her strolls around the garden.  She loves fresh air and being outdoors so long as she's well out of the sun's glare.

Sadie's been trying to grab toys and can easily get her hand into her mouth so her coordination is improving well and she's certainly progressing at her own speed.

I've been pretty low recently (being tired and unable to get out can really get me down) but Sadie is great company and can really cheer me up (when she's not crying with colic and teething!) - she's so much fun as she's trying so hard to communicate and really gets noisy when she's trying to make a point.  Sadie's very giggly recently and gets a cheeky look about her as soon as her daddy walks in from work as she knows she'll get tickles.

I'm hoping I'll be able to get Sadie out more over the next few days and weeks - fingers crossed!!
 

10/07/10 Update

July 10, 2010

I thought I'd write a quick update whilst Sadie is chilling out and finally cooled down.  Its so hard keeping babies cool in warm weather.  I don't know how people go on in warmer climates.  The moment I pick Sadie up she's warm and sticky and she's not worn much but her nappy for the last few days.

This week we've been to visit Natalie and her youngest daughter Hetty.  Vicky and her youngest son William were over too and it was good to see Sadie nice and relaxed in the company of other childr...


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04/07/10 Update

July 4, 2010
Well its been quite a busy week for Sadie and next week is busy again.  Luckily she's in very good spirits and seems to be enjoying herself - lots of laughing, smiling and gurgling!

This week we've seen Sadie do a half roll (as already posted) and she now spends most of each morning thrashing about trying to roll over; so the determination is well and truly there and its only a matter of time - GO SADIE!!!

As you know, Sadie had her 6 months birthday on Wednedsay and she had a really good day. ...
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30/06/10 Update

June 30, 2010
Sadie is 6 months old today!!  I cannot believe where the time has gone!

If you've read my previous blogs, you'll know that this huge milestone is something that we were told we should never hope to see but we are so lucky that Sadie has immense strength and a love for life and she has fought so hard to be here with us today.  Edwards Syndrome affects around 1 in 8000 babies and most never make it to birth.  Those who do, sadly hardly ever make it through the first 2 weeks.  In fact one (very ...
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20/06/10 Sadie's Poem to her Daddy on Fathers Day

June 23, 2010
When you first held me in your arms on that cold December morn
I knew that you had loved me since long before I was born
You took such good care of me and my Mum
Learnt to feed me and how to clean my bum!
By my side night and day
You gave me strength all the way
Before I knew it, I was coming home
You took me in your arms and we went for a roam
To this day I still love when you show me our tree;
or you get me dance: it makes me feel free!
I once was so tiny; I slept on your chest
and Daddy your cuddles ...
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23/06/10 Hydro Update

June 23, 2010
Sadie and I are absolutely exhausted! I took Sadie for her first Hydrotherapy yesterday and it was a real experience for us both.  I found it tougher than I'd imagined.  I'd gone along feeling quite excited but as we arrived at the Park Lane School in Macclesfield (a superb facility!) I started to get a bit nervous.  Seeing the other children with disabilities at the school and taking in my surroundings really hit home to me that this is how things will be if we are lucky enough for Sadie to ...
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18/06/10 Update

June 18, 2010
A long night last night with Sadie wide awake and teething.  She's been teething on and off for a few weeks now and just wants to sit and chew our fingers.  Sadie spent last night with lots of cuddling and watching her disco lights.  In the end she had to come back in our room so I could get some sleep.  Joys of parenthood!  Thank goodness for coffee!

We had another physio session at home this morning and Lisa told me she can see improvements already from the exercises we do several times a da...
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15/06/10 Update

June 15, 2010
The appointment to check out the sleep system was great.  It's so much more than a sleep system and we had Sadie lying on her tummy then in a comfy seated position and various others.  She smiled and gurgled lots and then nodded off, so we think it was a hit!  She was exhausted by the end of the day.

Physio is great for Sadie and Lisa, her physiotherapist was impressed by how much improvement there has been in her hands.  Sadie's fists have tended to be clenched with a flattened thumb (typical...
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